6.14.2013

From our friends at All Flared Up




Ten Things You May Not Know About My Experience With RA

1. When I was newly diagnosed, I ‘quit’ my first rheumy in a blaze of glory. He made me cry and his admin was giving me a hard time about releasing my records. I had a moment and called her a name I’m too ashamed to type here.

2. I have permanent erosions on the ball of my left foot. It only bothers me when I stand for a long time in bad shoes.

3. Before I was officially diagnosed, my feet hurt so bad that I really did wear tennis shoes with a business suit. More than once.

4. I have tried every detox diet for arthritis out there including the one where it has you chug saltwater to make you…um…use the bathroom. Which, FYI, doesn’t work. Chugging that saltwater and having NOTHING happen sucks. Waking up the next day 7 lbs heavier due to water retention…also sucks.

5. I can give myself shots, get regular bloodwork, and have had infusions and aspirations. They don’t bother me. But I’m terrified of tetanus shots, TB tests, and the dentist.

6. I didn’t really tell anyone I had RA for the first two years I had it. I’m still very protective over who gets to know the details.

7. The majority of my friends have no idea that this blog exists. Even still, I make a point not to mention specific or identifiable stories.

8. I’ve only ever let one person see me give myself a shot. It just feels too personal for some reason. I’d actually be more comfortable walking around naked.

9. I had weird hormonal things happen in the months before I started having symptoms. Pre menstrual depression so severe that if I thought you had looked at me wrong, I’d burst into tears. Even today, if I start or switch birth control pills, I have strange aches and pains for the first month or two.

10. The first two places I experienced inflammation were the arch of my left foot and my left pointer finger. In both cases, I literally woke up one morning and it felt like I’d been stung by a bee.
And there you go! Do we share any of these? I’d love to hear.

1 comment:

  1. Well, I just wanted to say thank you for having the courage to share as much as you have with this audience. This disease can be so debilitating when you consider the inflammation and aching joints. However, I don't think that many people realize the total effect that it can have on the body. I helped put together this infographic on rheumatoid arthritis last year, and I wanted to share it with you. Hopefully, you'll get a chance to check it out.

    ReplyDelete